Thankful For Down Syndrome?

November is a month of Thanksgiving.

Ephesians 5:20

giving thanks Always

for ALL things. . .

So, can one be thankful for a diagnosis of Down Syndrome?

As a family with 2 kiddos who have Down Syndrome. We are truly thankful!  I can tell you, when Desi was born and we all realized that she had Down Syndrome, We all laughed with sheer surprise . . . and joy.  Yes, joy.  We knew that she would bring us laughter, and pride, and joy.  And she has.

 

Psalm 139:13

For You formed my inward parts;

You covered me in my mother’s womb.

I will praise You, for I am fearfully and wonderfully made.

 

 

Desi staring into the eyes of my Uncle Daryl

 

 

Something most people, people who don’t have a child with Down Syndrome, overlook is the fact that without a diagnosis of Down syndrome, our children would not be our children.  Having Down Syndrome, Trisomy 21, by definition, is having a third 21st chromosome.  It is part of who they are.  Without that third 21st chromosome Rudy would not be Rudy.  Without that third 21st chromosome, Desi would not be Desi.  It is part of their DNA, it is part of who they are.  If one day, miraculously, or magically, all the third copies of all the 21st chromosomes were erased from their being. . . . There would be a different person there.   You can’t erase part of anyone’s DNA and have them be the same person.

 

. . . Marvelous are Your works,

And that my soul knows very well.

 

Rudy and Desi both are very special people. They are beautiful.  God has a purpose for them.

Secondly, it makes our family who we are.  Not one of my children is dispensable!  If we were missing any one of our kids, our family would not be what it is.   Each child is a vital part of our family life: as they are. As a matter of fact, the world would not be the same without them.  The world is a better place because they are here!

 

 

 

“When (I) was skillfully wrought . . .

   Your eyes saw my substance

                                                                        And in Your book they all were written.

The days fashioned for me. . .

When as yet there were none of them.

 

 

 

Rudy and Desi teach us every day about what is important in life:

Love

Joy & Laughter

Time. time to do whatever we are doing right now with the people we love

 

“For I know the plans I have for you, ” Declares the Lord.

“Plans to prosper you and not to harm you, plans to give you

hope and a future.”

Jeremiah 29:11

 

When I read this in a card someone gave me, when Desi was born.  I wept.  I knew it.  I knew it was true.  But, to think of it in connection with her, including her Down Syndrome, made this Mama’s heart swell to bursting.  God has specific plans for her. Just as she is.  and, to boot, He’s been planning it since the beginning of time.  She is perfect, created the way God intended for her to be, for the specific purpose he has intended for her. Period.

 

Rudy and Desi show us aspects of who God is every day. Aspects that we might never take time to know otherwise.

 

There are:

Lessons we learn

People we touch

People who touch us

People we inspire

Acts of love to be given

Hearts that we heal

Instances of Beauty we behold

every day,

that would never be without the Down Syndrome diagnosis of Rudy and Desi.

 

 

Yes, we are Thankful. There is much to be thankful for!

 

Have you recently received a diagnosis of Down Syndrome for your little one?

you might find these pages of interest: In the Image of God

or    The reality of a Down Syndrome Diagnosis

 

There is a whole tribe of mamas out there who also feel this way about their little ones.  They too, are Thankful For Down Syndrome.  Here are a few other bloggers who will tell you why.

 

 

Dawn is a homeschooling power mom of six. Her youngest, Cedar, rocks an extra chromosome.  She began her blog Cedar’s Story to change perceptions of Down syndrome. She shares hundreds of diagnosis stories from around the globe, in hopes to show parents that they are not alone and Down syndrome is beautiful.

Read About Her Thoughts on Thankfulness

Be sure to find her on instagram @CedarStory

 

 

 

 

 

Courtney is a mom of three including beautiful twin boys, one with an extra chromosome.  She began her blog Inclusion Evolution to advocate for inclusion in school and work for individuals with Down syndrome. Her goal is to empower parents, teachers, employers and self-advocates to create better opportunities for our loved ones through advocacy.

Read About Her Thoughts on Thankfulness

Be sure to find her on instagram @InclusionEvolution

 

 

 

 

 

Trista and her beautiful Bernadette are showing the world that they are thankful too Trista blogs over at TristaPark.com and says “I created my blog is to process through the journey. The prenatal diagnosis, the heart surgeries, life in general. It’s been a really good outlet for me to process all the emotions and events especially those of this last year. And through that, I hope to encourage other moms with kiddos with special needs that they are not alone and all the feelings are ok!”

READ HER THANKFUL POST HERE

Be sure to find her on Instagram @mrs_t_park

 

 

 

 

Posted in Down Syndrome, Family, Life, Special Needs.

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